Innovation, Entrepreneurship and Summer Institute

Innovation + Inclusion Welcome

For our final week of Summer Institute, our guest lecturers were Meenu and Sarina from the University of Maryland. Meenu and Sarina work together at the Academy of Innovation and Entrepreneurship and teach students how to think outside of the box and bring new, interesting ideas to life!

After the “getting to know you” portion of the group, Meenu began to talk to us about the introduction experience. She had mentioned she was at a conference with a lot of new people, and noticed that all she was given, was a simple name tag to introduce herself. Yes, a name tag can be helpful…people will instantly know your name without having to ask. But that’s all they will know about you.

Your name.

Sarina mentioned how a conversation can open up if prompted in the right way. For example: Your doctor asks you how many times a week you go to the gym. You can easily and quickly respond by saying “3-4 times a week”. However, your doctor can get a much better answer with more detail, if he asks you to tell him about your last visit to the gym!  

Meenu then asked the students to pair up, and tell each other a few of their own introduction experiences, mostly the awkward ones! We had a small group of 4 students that day, so pairing was easy. Here are a few of their stories:

[Ben chose to ask Ian a prewritten question: Tell me about a time you had a ‘meeting new people’ horror story.]

Ian: Once I found I had all my strength in my arm. This is scary for both others and me.

Ben: I’ve been there as well my friend. Once I met someone who talked at me like I was a dog, and also got in my face like they wanted to give me a scratch

Ian: So humiliating. So rude. That is so hard for many of us to face time and time again.  

[Tom asked Emma the following question]:

Tom: Tell me about a time someone changed your opinion.

Emma: I think our discussion of autism with Tribe and UVA changed my opinion of NT’s acceptance of us.

Tom: The opinions that I have come from my personal experiences. I believe that there is no excuse for violence in protest. I have never participated in a rally where I have had to face off with haters in person. I saw the events in Charlottesville and I respect the restraint the peaceful protestors showed to not throw punches.

 

After hearing from each other, the group was then told to come up with two different products, services or experience ideas to help their partners have a better introduction experience. Meenu and Sarina also reminded us that with these ideas, the sky’s the limit! Go crazy! Get creative!

Challenge accepted.

Here’s what everyone came up with:

Tom’s ideas for Emma: Noise cancelling headphones that allow people to hear Emma’s true words even when she needs to scream. Technology that soothes Emma’s body like a blanket that Emma can upload  a playlist to. She can share her favorite songs. Music is a great conversation starter.

Emma’s ideas for Tom: First, I would create a window that would allow someone to see who you are inside so they see the real Tom. Then I think would create an empathy hat that lets the wearer feel what it is like to have body brain disconnect.

Ben’s ideas for Ian: The first idea I have for Ian is an automated pair of sunglasses that can sense when someone is attempting to engage Ian in conversation, that can read levels of skepticism as well as trust and comfort and/or fear in an individual. This next idea to help Ian is a little out there- What about a service that coaches people how to handle awkward introductions.

Ian’s ideas for Ben: Have a room for him to lay down in or relax before introducing himself to others. Regulation is key in high stress situations. This is true for neurotypicals too. Send in the techs for my next idea. How about a grand screen to show words as he pokes to letterboard. This is easy to do but helpful.

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Wow! We loved every single idea that these guys came up with, and definitely teared up only a little…

Then, with little time left in the group, Meenu and Sarina administered a quick test to students and communication partners!

We didn’t know much about this quiz, except that it felt like a personality test. All we knew was that we had to answer to the best of our ability. Meenu and Sarina did a quick calculation, and by the end of it, we were told to wear a specific color to Summer Institute the next day. Hmmmm, we wondered…

Tom had to wear yellow. Ben had to wear white. Emma had to wear green. Ian had to wear yellow. Janine had to wear yellow. EV, myself, Liz, and Roxy had to wear green.

We later found out that those colors represented what HATS we wore when thinking creatively in a group!

 

  • Green = Creativity, possibility, new ideas, seeking alternatives/concepts
  • Yellow = Brightness, optimism, values, benefits, feasibility
  • White = Information, facts, what’s known, objective, context

 

 

We all agreed with our hat colors!

 

The next day, we talked about a few different inventions made for several different reasons; The comfortable potato peeler, incubators for newborn babies in Nepal, surgical tools, a bowl that could be held several different ways, the waking up experience. We learned that when people hear the word innovation, they think Eureka! Or the moment when lightning strikes, but innovation is not a one time event. It’s a process to find creative solutions to various problems. The design thinking process is a methodical way to creatively solve problems!

 

Here is an example of the activity:

When babies are born with a low birth weight, they’re kept in an incubator. In Nepal, a team made easier, low maintenance incubators. When the team visited hospitals where incubators were being used, they found that the incubators in the hospitals were totally empty. But tt wasn’t that there weren’t any low weight babies… and the clinics had sufficient electricity. What was the problem?

The team interviewed the parents and learned that babies were usually born at home, NOT at clinics. The need wasn’t for cheaper, easier incubators, but the need was to keep babies warm. They also had insight that most mothers in labor didn’t have the means to make it to the clinic. So, the team created blue sleeping bags that were easy to clean and kept their babies warm ( we also learned that white in their culture is associated with death!). EMBRACE is now it’s own company! What does this tell you about the process?

 

Emma:  Had to create the right solution for the right problem

Ian: Seeing the direct problem and understanding the culture

DDK: I think there is an element of compassion to solve a completely new problem.

Tom: The process involves being educated about the community it’s supposed to serve.

Ben: Sensing the problem.

Nailed it!

The last day of Summer Institute, the group went to the University of Maryland to put all of our great ideas to the test! We all broke out into small groups, 1-2 students and a communication partner, to create a prototype for the inventions they created earlier in the week. We shared out the ideas afterward, and discussed how to give feedback using the phrase “I like…I wish…I wonder”.

For example, “I like the colors you used in your painting. I wish to see more of your personality in it. I wonder if people will understand what you are trying to say.”

 

This has been especially important to this group – learning how to give feedback!

 

Take a look at the pictures of our adventure at UMD and the Academy for Innovation and Entrepreneurship below!

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Tom hanging out in the “workshop”!

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Ben and Janine creating the prototype for his sunglasses.

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Ian and Roxy creating the prototype for his “grand screen” letterboard.

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Emma and Meghann creating the prototype for the “Empathy Hat”.

What an incredible experience for all who took part and an amazing way to wrap up our Summer Institute!

Until next time,

~Meghann and The Tribe

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Art as Social Protest: Let Us Show You The Wei!

GKTC Summer Institute kicked off the summer exploring multimedia journalism: photography, videography, television, and radio. The past two weeks in Summer Institute was all about media in a different context… A R T!

Liz Michaels, GKTC’s longterm intern, is also an art instructor and led us in a discussion about types of art: fine art and conceptual art. We learned that in fine art, more value is placed on the aesthetic aspect of the final work while in conceptual art, the thoughtful idea or concept behind the work takes precedence. One particular type of conceptual art we focused on was social practice art. For those who don’t know what social practice art is, Tribe member Ian explains, “We are focusing on social practice art which is a type of art that is interactive, engages the audience, and conveys a message.”

We looked at examples of social practice art that inspired collaboration and interaction in environments outside the usual gallery or museum walls. Check out this short documentary about a work by Thomas Hirschhorn entitled Gramsci Monument.

Feeling inspired, Tribe tossed around ideas for their own social practice art piece. After some collaborative brainstorming, Tribe decided that they wanted to use their conceptual art piece to convey that “We are more alike than different,” an idea that Ian came up with. They wanted their final message to include:

Matthew: “We all have the same basic needs like love and acceptance.”

Anna: “We all have loved ones.”

Huan: “We are all our own person and have choices to make.”

Ian: “We are human beings with feelings.”

Tom: “We all have high expectations for ourselves.”

Another artist’s work we delved into was Ai Weiwei. His work prompted a mix of reactions. One in particular, entitled Dropping a Han Dynastry Urn, features Weiwei dropping and smashing a 2000-year old urn. The urn was valuable not only financially, but also symbolically and culturally.

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Source: https://www.royalacademy.org.uk/article/ai-weiwei-beginners-guide

Huan:  “Holy moly, I can’t believe he did that in the name of art. If you wanted a reaction that was a way to get a big one.”

Matthew:  “I think it was badass but intense.”

Ian:  “I think it’s a shame to destroy history for the sake of attention.”

While there’s some debate in Tribe over what should and shouldn’t be considered art, everyone agrees that art is about pushing boundaries.

To end the unit, we took a trip to Smithsonian’s Hirsshorn Museum to see Ai Weiwei’s work up close.

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A trip to Washington, D.C. isn’t complete unless you take some tourist-y pictures with the Capitol and the Washington Monument!

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Waiting for the museum to open. Laura S. DeThorne, an SLP from the University of Illinois-Urbana, and her colleague, Henry, joined the outing!

The first part of the Ai Weiwei exhibit showcased a wallpaper installation entitled The Plain Version of the Animal That Looks Like a Llama but Is Really an Alpaca. After a closer inspection of the wallpaper, the Tribe found images of “technology” (Ian), “Twitter bird” (Huan), and “handcuffs” (Ben). Emma and Tom offered up their interpretations of the piece: “It says something about corruption” (Emma) and “The golden age of policing” (Tom).

The exhibit also featured the debut of Trace, an installation of Lego portraits. From the Hirshhorn website: The portraits are of free speech advocates and activists who “have been detained, exiled, or have sought political asylum because of their actions, beliefs, or affiliations.” In Emma’s words, “They were all revolutionaries.”

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Checking out Trace. Navigating past the wall art and the floor installation took a lot of motor control! Huan reflects on the experience: “It took a lot to be aware of everything. The hardest part was not to touch the walls.”

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Reading about the revolutionaries featured in Trace.

When asked how the portraits were a form of social protest, Huan shared: “It is recognizing their sacrifices.” Ian also shared, “Well plastering their infamous images on the floor calls attention to their names.”

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Posing like Ai Weiwei!

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Sharing their final reflections on Ai Weiwei’s work:

Ian: “The openness of the space makes such a difference. I get what Liz was saying about the space being part of the experience.” “It was powerful to see protest in art while browsing through each level of the Hirshhorn. The Ai Weiwei exhibit with the Legos was by far my favorite. It featured images of revolutionaries accused and charged as terrorists in Legos on the floor. It’s so crazy to think of being punished for standing up against evil.”

Tom: “I think it was a good way to call attention to those persecuted for social advocacy.” “It was so intense. I got every piece and I felt the oppression the artist wanted me to. I felt empowered to share my own oppressions.”

Huan: “The trip to the Hirshhorn was powerful I was terribly impressed with the art and how it can communicate the artist’s message. I thought the Ai Weiwei exhibit was incredible. The pictures of individuals who have lost their freedom for standing up for their beliefs was so amazing. I can’t believe that he was able to do this in Legos!

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Until next time, D.C.!

~Janine Caguicla and The Tribe

Chess Friends Forever

Hi everyone!  My name is Karen Dorula and I’m an occupational therapist at GKTC.  Elizabeth has challenged us all to jump onto the blog.  I’m very excited to be able to share all of the wonderful chess that has been happening here!

I started teaching chess in January 2016 after one of my letterboard clients, William, asked me to teach him “something hard.”  I thought of many different challenging topics, such as the periodic table of elements or the physics of outer space, but when I thought of chess, a quote from one of my favorite movies popped into my head: “Knight to e4.”  (Yes, it’s a Harry Potter quote!)

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I went online and immediately started learning everything there was to know about something called “Algebraic Chess Notation” (ACN).  ACN is a system of letters and numbers that correspond to moves on a chessboard.  Most players use ACN to record their moves in a game so they can review it later.  I thought it would be a perfect way for William to communicate the move he wanted to make and since I’m an occupational therapist, I saw this as a great opportunity for him to practice his motor skills as well.  

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There was one slight problem.  I didn’t really know how to play chess.  I had a basic understanding of how the pieces move, but that was it.  I reviewed the fundamentals of chess by myself, and then started teaching it to William.  We practiced simply moving the pieces to a targeted location.  He would spell out the ACN on a letterboard and then I provided him with the least amount of assistance to move the piece.  I continued to teach him more advanced concepts by staying only one step ahead at any given moment.  This became a problem as I realized just how quickly he was learning.  Something that would take me an hour to learn took him only a few minutes.  For example, when capturing, you spell out the symbol for the piece you want to move, the file it’s currently on, an x to indicate the capture, and the square you want it to move to.  So, if you want to capture a piece using your rook, it might look something like, Raxg5.  This took me a longer to learn than I care to admit, but after a few minutes of practice, William spelled, “MAKES SENSE TO ME.”  

William loved learning chess so I dove in head first.  I spent hours a day playing chess on my phone and watching videos online that I later turned into lessons.  After a few weeks, he sat down to play a game with his dad.  His parents noted how regulated he was during the game.  His body was able to stay extremely calm because his brain was so engaged.  As I teach more people to play, regulation is a common result of chess.

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William’s first time playing against his dad.
(From left to right: William, George, Karen)

I have now taught dozens of students how to play.  At first, I didn’t realize just how perfect chess can be for people who spell to communicate (thank you to Elizabeth for seeing the potential!).  Chess is a hobby that can be played throughout a lifetime and you can always learn something new.  Since there are small “mini games” you can play, you can practice even if you only have 10 minutes.  It’s a fun way to get on the letterboards with family members and practice skills.

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Huan and Ian playing a Knight Game, with Huan’s brother and Ian’s dad holding the letterboards.
(From left to right: Thuy, Huan, Ian, Eric)

Chess is also the best equalizer.  It doesn’t matter your age, gender, race, language, socioeconomic status, or diagnosis.  During a discussion about chess as an equalizer, Dustin wrote: “THAT WAS WHY I WANTED TO LEARN HOW TO PLAY WITH THE LETTERBOARD.  PLAYING WITH THE LETTERBOARD IS A WAY TO PLAY WITH YOUR MIND INSTEAD OF YOUR BODY.”

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Chess provides the perfect opportunity to meet new friends.  Here’s a conversation from a chess sessions with Ethan and Dominic:

E: HI, MY NAME IS ETHAN.  KAREN HAS TOLD ME SO MUCH ABOUT YOU.  MAY GO PROFESSIONAL WITH CHESS.  KIDDING.

D: THAT WAS FUNNY.  MY NAME IS DOMINIC.  I JUST STARTED PLAYING THIS WEEK.  I AM REALLY EXCITED TO PLAY.

E: THANK YOU.  MAKES ME HAPPY TO MAKE A NEW FRIEND.

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William, Ethan, and Dominic play against each other in pairs or have “Chess Club,” which they have named One For All, so they can learn and practice drills together.  
(From left to right: Rabun, William, Ethan, Karen, Dominic)

 

I’m grateful to William for challenging me to learn something hard.  Chess didn’t turn out to be very hard for him, but it has become a hobby that he loves.  Chess combines motor, communication, and friendship, which is an OTs dream.  My absolute favorite part of chess is the CFF – Chess Friends Forever – that have been formed! These friendships are what push me to stay up to speed with my students and continue to improve with every session.

I will become more active on the blogs to share information and other activities that we’ve been doing at GKTC.  Until next time!

~Karen

 

 

Diagnosis Disruption: Debunking the Myths of Non-verbal Autism

Autistic individuals are the true autism experts. Matthew Lager’s TASH Talk debunking the myths of non-verbal autism is a must read for anyone who has an autistic child or works with autistic individuals. Matthew uses a letterboard and keyboard to spell to communicate. He prepared this presentation for the 2016 TASH conference with his mother over a several weeks. Due to the 10 minute time limit of the TASH Talk, Matthew’s speech was read aloud for the presentation with spelling closing remarks live. Matthew’s goal is to challenge people to rethink autism and understand the capabilities of people who have been labeled as “low functioning”.  ~Elizabeth & Matthew  

Matthew

Thanks for letting me speak today. Thanks to TASH for including me and for your commitment to advocating for an easily dismissed segment of society.

I am going to share my experience of being erroneously mislabeled as low functioning and of low intelligence. My story is representative of thousands of others labeled as low functioning. My life changed in ways most can not comprehend the summer of 2014 when my parents took me to Herndon, Virginia to see Elizabeth Vosseller. My hero, Elizabeth, introduced me to the letterboards. Through a letterboard and now keyboard I am able to communicate my true thoughts by spelling them one finger at a time.  I wrote this presentation on a key board tapping the letters one at a time.

The topic of my talk is:  Diagnosis Disruption: Debunking the myths of non-verbal autism.

Many people view me as being stupid, emotionless and without the ability to understand other people’s feelings. It is not a surprise because scientists describe autistics so inaccurately. I am here to tell you we are much more complex than you believe and also more ordinary than you realize. We are confusing and difficult to understand because our exterior doesn’t match our fully intact brain.  We have sensory problems that make us look out of control. Some of us have voices that don’t say what we mean. Others have motor planning impulse control issues that make us do things we didn’t mean to do.  In spite of the tremendous challenges we are all just like you with complex thoughts and feelings.

Scientists typically look at three key areas when determining whether someone fits the criteria for further screening for autism spectrum disorder.  The three areas are impaired social interaction, impaired communication and restricted or repetitive behavior.  They often assume that functional problems of speech, social interaction and unusual behavior are indicative of low intelligence and poor cognitive function. They create checklists to define the behavior we do that is not typical without understanding that many of these behaviors are in fact motor based rather than a cognitive deficit.

At my previous school, I was not allowed to spell to communicate and therefore was unable to change their incorrect assumptions of me.  They were unable to see beyond my atypical behavior. As a result, I was taught at the first grade level last year.  My new school was open to seeing me differently and allowing me to use the letterboard all day.  I am now taught at grade level which is eight grades higher than instruction at my previous schools. I wish they could see me today and perhaps treat others with so called low functioning autism differently.  This school move only occurred when a group of experts in the school system were willing to suspend their preconceived ideas about autism. I hope you are willing to do this also by hearing what my friends who are here and I have to say.

I am going to ask you to look at a few more examples from my perspective.

While on the surface these scientific descriptions seem accurate, I am going to describe how what you see in many autistics is not the full or true picture.

1)  Wild erratic movements without purpose: When I look most dysregulated I am reacting to overstimulation and sensory overflow. It is impossible for anyone to evaluate my internal state when just looking at my out of control body. For example I become very dysregulated, cover my ears and make an odd sounding noise when people sing happy birthday.  The out of tune singing, especially my mom’s voice (just kidding mom), makes me feel anxious and covering my ears and making noise muffles the sound. When people see my reaction they assume I don’t want to be part of the celebration and stop including me when in fact I love birthdays and just need a coping mechanism to participate.  When I appear totally out of control, I am internally trying to focus and calm myself during an overly sensory stimulated situation.

2) Inability to initiate or sustain a conversation: Experts claim low functioning autistics are unable to hold a conversation. It is true that I am unable to do it verbally. However I can have full and meaningful conversations with my friends and others if I am able to type my part of the discussion.  I have three friends in the room today who communicate the same way I do.  I wish scientists or disbelievers would watch our interactions and see firsthand the complexity of our discussions, the way we support each other and how emotionally connected we are to each other and the world.  One of my friends dreams of being a writer. Another really wants a girlfriend.  All are interested in a full life with the same opportunities for education, living arrangements, jobs and community that any other person wants.

3) Odd, repetitive behavior: My behavior that experts describe as repetitive and without purpose is actually very useful in calming a highly stressful situation. For example, I often ask repetitive questions when I am nervous about a transition or don’t know how to get the words I want to say out of my mouth.  I understand why experts think these behaviors are odd but understanding the reason we do them is crucial to understanding us.  A good example of this is my obsession with the Wiggles. I talk about them all the time but can’t stand them. As annoying as it is to be 15 and talking about a preschool music group, reciting their lyrics does calm me down when I am stressed.

4) Poorly developed imaginary play: I have been told those with autism have no imaginary play skills. If only someone could get inside my brain you would see how I am always creating stories to pass the time when I am being ignored. I create stories about people traveling around the world and meeting famous historical figures. One of my favorites is of my friends going to meet Abraham Lincoln and talking to him about emancipation of those in society who are disenfranchised. So, I will continue to fail the tests researchers use, like putting plastic figures in front of me and asking me to pretend some contrived story.  However, when I see the figures I’ll pretend in my mind the figures are Lincoln’s soldiers who may have lost this one battle but can still win the war.

5) No or limited interest in social interaction: I understand why someone thinks I’m a loner and prefer isolation. However this could not be further from the truth. In social situations I sometimes leave the room when others are trying to interact with me because i am so excited and my body experiences a rush of such intense happiness that I launch like a rocket out of the room.  When I come back unfortunately the social interaction is lost and even worse than losing that one opportunity I likely pushed the person away for good.  This is one of many examples of how my outward behavior doesn’t match my strong insatiable need to be with others and how researchers don’t understand me. I want friends more than anything. I am lucky that now for the first time I have a group of people who I feel close to and who I feel understand this.

Every time someone with autism is allowed to share what goes on in his mind it gives experts more information and insight into the complicated inner workings of those of us who are so misunderstood. Hearing from Autistic individuals is integral to scientists understanding us and our critical and empathetic thoughts. By doing so, they can study the huge gap between the vast amount of intelligent, intricate, and inventive thoughts that we have in our minds and our difficulty sharing them in a typical way.

In closing so called experts need to start by assuming that their patients with autism are truly thoughtful and intelligent. Entering the patient/clinician relationship with this shift in thinking is the most important first step. Allowing us alternative forms of communication combined with researchers commitment, dedication and hard work we can actually make changes to research protocols that will make a difference in my life and others like me.

So, death to the idea of the empty headed autistic. I hope that people will see me and my friends beyond our exterior and see us for the people we really are.

**Note: we had blue tooth connection issues with the keyboard during the presentation resulting in repeated letters.  We edited the additional letters below for readability. 

I am happy to be here and have a chance to tell our story. Please spread the word and let others know.

Inclusion ~ Evan, Shine Your Light!

I wanted to finish off 2016 with one of our favorite moments of the year. Prepare for some guaranteed happiness as you witness what happened when one of our clients was given the opportunity to conduct his school choir. Evan is one feisty, adorable guy who never fails to make me laugh during our sessions together. His communication through spelling is strong – but Evan has a way of getting his point across with or without the letterboards! Evan’s video of his conducting debut went viral but when his mother told me the entire story,  I knew you all needed to hear it too!  Evan’s mom, Elizabeth Zielinski, agreed to share Evan’s story with us as today’s guest blogger.  Enjoy and kick off the New Year by sharing this story of joy!!  ~Elizabeth, Elizabeth & Evan 

My son, Evan, is 11 years old, autistic, and unreliably verbal. He is in fifth grade in public school, placed in a self-contained classroom, with various opportunities throughout the day where he is included with his neurotypical peers in the general education setting.

Some of Evan’s behaviors prevent him from being fully mainstreamed into general education classes for safety reasons. But with our insistence and with our school’s cooperation, he is included in many experiential learning opportunities and also in extracurricular events. One of those events was the recent fifth grade winter chorus.

His dad and I were told he would be included last Fall, and we hesitated to give permission because we didn’t know how well he would do with the sensory stimulation. But we had a lot of faith in our school’s remarkable music teacher, Mr. Charlie Ring, and trusted that he would ensure Evan’s experience was a good one.

Leading up to the event Evan grew excited and told us that he was going to be a guest conductor of one song. He showed us his plan for approaching the front and leading the chorus.  We were naturally entertained and thrilled to expect this.

When the afternoon school assembly performance arrived, I waited expectantly to see Evan’s debut as conductor. To my disappointment, it didn’t happen. I approached Mr. Ring to ask why, only to learn that it was never part of the program, but a way that Mr. Ring was helping Evan to participate in rehearsals. Evan didn’t seem to realize that it wasn’t going to happen for the actual performance, or if he did, his unreliable speech meant we didn’t know what he expected or hoped to have happen.

And that’s when the magic started. After I asked my question of Mr. Ring and we realized the misunderstanding, Mr. Ring only asked if I thought Evan would be able to do it without a formal rehearsal. I said I thought he would. Right then and there, Mr. Ring starting planning the changes to include Evan as guest conductor in the evening performance for the community.

Prior to the second and last performance, Mr. Ring explained to the rest of the fifth graders what the change to the evening program would include:

Missing from that video was the round of applause Evan got from his classmates before the announcement that he would be conducting, proving that acceptance comes naturally to kids when given the opportunity.

Evan waited patiently backstage, but you can see the anticipation on his face.

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And then, show time. It was the second performance of the day, he had been wearing his uncomfortable show clothes for hours, and he had to stand on risers and pay attention; even though singing along was not an option for him. Anyone who knows him would tell you, all of that alone was a lot to ask. But toward the end of the show, this happened:

No one had seen him do this before, but he showed us that it was worth the wait. As of this writing, the video has been viewed over 50,000 times on Facebook and another 1,300 times on YouTube; and has been shared hundreds of times worldwide. Based on the comments I’ve received; it has touched a lot of people.

What I love about this is not just that my son had a moment of joy and celebration. It’s also that everyone else shared in that with him. It wasn’t just the joy on his face in the video that touches me, it was the appreciation of his fellow fifth graders and the audience when they watched him have his starring moment. There are some chuckles, but not at Evan’s expense.  They are just seeing him have an entertaining experience.

The most important thing we have learned about inclusion through this experience is that it doesn’t mean building events around Evan’s needs, oversimplifying his experience, or putting him into a fully neurotypical environment and seeing how long he can last before extracting him. What it does mean is being open to and creative about those moments that allow him to learn and grow like any student wants to do. That requires seeing him with the best of expectations about what he can do, and trusting that no matter what happens, everyone will grow from it.

Finally, the awesome Mr. Ring sent Evan a celebratory gift after the fact: he now owns the conductor’s baton he used that evening as a reminder of his starring moment.

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Santa doesn’t need speech to understand

This holiday, our families from New Zealand decided to have holiday lesson swap. Each of the ten families contributed one holiday themed lesson and walked away with TEN LESSONS! Since I am no fool, I jumped right on this swap. All of the lessons have been fantastic but I have particularly enjoyed the lesson about Tinsel and the Christmas Spider, written by Kiwi mum, Jo Lussey.  In the spirit of the holidays, Jo has offered to share her lesson with all of you! I particularly enjoyed lesson because I had never heard this story before.  At the end of this lesson, I challenged my students to create a brand new Christmas story. My kids have come up with all kinds of fantastic stories but this one by friend Alex stole my heart!  ~Merry Christmas! Elizabeth & The GKTC Team

Alex decided to ride my style - tucking his pencil behind his ear!

Alex decided to ride my style – tucking his pencil behind his ear!

So many Christmases ago, there was a boy who did not have real communication. Realizing that he could not talk the way he wanted to, he could not ask Santa for communication. The boy was absolutely devastated.  However, Santa does not need speech to understand. He landed on the boy’s rooftop and slid down the chimney.  He placed a letter board in the boy’s stocking.  Wonder of wonders, the boy who could not communicate could spell. He loved to spell and share his words with the world.  This was the merriest Christmas in his life.

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The Value of Communication

Last week we promised more presentations by our students at the 2016 TASH Conference in St. Louis.  Ian Nordling is our next self advocate presenting his thoughts on the importance of communication in his TASH Talk.  Ian has been spelling on the letterboards and keyboards for over 2 years and is now beginning to type independently. He is a tenacious advocate for access to communication.  We are sure Ian’s message will resonate you just as they with the audience at TASH. ~Elizabeth

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Ian (center) poses with his cousin Kelsey Aughey (left), one of the fantastic ACTS Professionals in the GKTC Professional Network serving kids at the Hirsch Academy in Atlanta.  Ian and Elizabeth Vosseller (right) have worked together since 2001.

Thank you for being here today. I am Ian Nordling. I am here today to talk about the beauty of communication. I am uniquely qualified to talk about this because I did not have a way to talk until three years ago.

This might sound impossible but it is true. I could not communicate more than a few words. Then I learned to control my arm so I could spell my thoughts on a letterboard. These words took the world for me. I could finally express myself after all of these years. You cannot imagine a greater triumph! The world opened up for me through those words.

I have been pleased to gain entry to the world through the words that had been stuck in my head but are now free. Unless you have been without communication you have no idea how important it is. I really can’t tell you every way that it has changed my life but I can say that it has changed everything.

I now live in Virginia because I was able to tell my parents I wanted to move there so I could be close to GKTC and others like me who spell. I now have phenomenal friends like me who talk with letters. I am finally learning and my intellectual curiosity is satisfied at last. I am incredibly happy today because I can communicate.

*TASH Talks are limited to 8 minutes, so Ian wrote the beginning of his speech (above) prior to the conference and completed the part below live.  

Thank you for being here today. I want to echo Elizabeth, don’t judge me based on my motor. You can clap more for that. I am hungry to learn. I hunger for friends. This hunger can only be satisfied through communication, understanding and acceptance. Time to change beliefs.