April has been established as Autism Awareness Month. Like many, we at Growing Kids Therapy Center, feel that a better practice is Autism Acceptance Month. To celebrate Autism Acceptance month, I will be featuring the voices of my RPM clients who spell to communicate. These are the only autism experts I consult these days! Their words are powerful and deserve to be heard! Huan, 18 years old, RPMing for almost 2 years, starts us out!
Huan, April is around the corner and is known as Autism Awareness month or as I prefer to think of it, Autism Acceptance month. What are your thoughts about the difference between these two terms?
WHO IS NOT AWARE OF AUTISM AT THIS POINT? PERHAPS A BETTER QUESTION IS WHO IS ACCURATELY INFORMED ABOUT AUTISM? I GET THAT PEOPLE CARE AND ARE TRYING TO HELP. I AM NOT KNOCKING ANY INDIVIDUALS BUT MANY OF THE GROUPS THAT SEEK A CURE SEEM NOT TO UNDERSTAND THAT IN THEIR MESSAGES OF FEAR THEY ARE SAYING THAT I AM SOMETHING THAT NEEDS TO BE CHANGED TO BE ACCEPTABLE. HOW CAN THIS BE ANYTHING OTHER THAN AN INSULT? SO, THANKS FOR BEING AWARE OF ME! NOW HOW ABOUT ACCEPTING ME OR EVEN EMBRACING ME?
*For this lesson, I read this article from the Washington Post about Ari Ne’eman, co-founder of the Autism Self Advocacy Network. Huan is a very fluent RPMer and we are currently working on his analysis and synthesis skills. So, I simply present the information to Huan and he summarizes the key points and provides his own reflections to the material. (*Note: Huan’s responses are in all capitals; my comments or questions are in regular type).
ARI SOUNDS LIKE HE HAS READ MY MIND! HE WAS DIAGNOSED MUCH OLDER THAN I WAS BUT WE HAVE HAD THE SAME EXPERIENCES WHEN REALIZING THE NEGATIVE VIEWS OF AUTISM AND THEREFORE US. WE DO NEED TO SEEK THE COMPANY OF OTHER AUTISTICS. I WOULD VERY MUCH LIKE TO LEARN MORE ABOUT ASAN.
ASAN SOUNDS INCREDIBLE! I TOTALLY AGREE THAT AUTISTICS SHOULD HAVE A VOICE ABOUT AUTISM. WE SHOULD USE OUR COLLECTIVE VOICES TO SPEAK AS A COMMUNITY. RIGHTS NOT CURES SHOULD BE THE FOCUS.
FITTING SOMEONES’ DEFINITION OF NORMAL IS WAY TOO MUCH EFFORT FOR TOO LITTLE GAIN. I DON’T WANT TO WASTE MY ENERGY ON THAT ANYMORE. I DO REALIZE THAT I LIVE IN THE TYPICAL WORLD BUT FEEL MOST AT HOME WITH THOSE WHO EMBRACE ALL OF ME. SO HAPPY TO HAVE THIS AT HOME, WITH MY FRIENDS AND WITH YOU AND MEGHANN! FINDING A PLACE TO BELONG IN THIS WORLD IS A CHALLENGE BUT IT HELPS TO KNOW I HAVE PEOPLE WHO LOVE AND ACCEPT ME!
Huan is a leader in the autism community and an advocate for those who still do not have a voice. Happy Autism Acceptance Month! Follow us all month as our autism experts share their views on autism, advocacy, inclusion and acceptance!
~Elizabeth & Huan